Privacy notice

The main purpose of Swedish Arthroplasty Register is to contribute to quality improvement in hip and knee replacement surgery and knee osteotomies. The activities of the register and its predecessors has contributed to improved quality of care and this work will continue.

The Swedish Arthroplasty Register include information on patient characteristics, prophylaxis, surgical technique and implant on individual level.

Data are collected by the health care professionals and through questionnaires to the patients. In addition, some data are included from the medical records, population registers and the Swedish Fracture Register.

The board of the Region Västra Götaland has an overall legal responsibility for the personal data in the register. The Regional Board is the personal data controller. The units that enter information in the register has local legal responsibility for the data collection.

Contact information

When information about you is included in a quality register, you have certain rights. Please read more about them below. If you want to contact the Swedish Arthroplasty Register about your rights, please use this contact information:

The Swedish Arthroplasty Register
Center of Registers Västra Götaland
413 45 Gothenburg
+46 10-441 29 31
slr@registercentrum.se

If you have questions about the information on you in a quality register you can as well contact a data protection officer. The data protection officer monitor compliance of laws related to the processing of personal data. To contact the data protection representative at the board of the Region Västra Götaland, please e-mail: koncernkontoret.dso@vgregion.se

You contribute to better care

By being part of a quality register you contribute to improve the care. It is voluntary to participate and it does not affect the care you receive. The information is used to compare the care between different care units and care providers in the country. The information can be used in improvement work and research. The quality registers contribute to new knowledge and the more patients included the more reliable the results will be.

Support in the law

Everyone who processes personal data must have the support in the law for this. The handling of personal data in quality registers is regulated by the General Data Protection Regulation (GDPR) and chapter seven in the Swedish Patient Data Act. It is permitted to register data in quality registers as the information is of general interest to the society and important in the healthcare. The personal who handle personal data in quality registers are covered by statutory duty of confidentiality.

How information about you is used

The information about you in quality registers can only be used to develop and ensure the quality of healthcare, generate statistics and research within healthcare, and for population estimation for research purposes. If someone wishes to use the information for these purposes, it can be disclosed digitally after a confidentiality assessment.

Secrecy

The information in the quality register about you is protected by the health and medical care confidentiality in the Public Access to Information and Secrecy Act. As a general rule, this means that information about you may only be disclosed from the quality register if it is clear that neither you nor anyone close to you is suffering harm if the information is disclosed.

Security

The information in the quality register about you is protected against unauthorized access to it. Only those who need the information to perform their work may have access to them. It is checked that no unauthorized person has accessed the information (log follow-up). The information is protected by encryption. Logging in to the register and take part of the information takes place in a secure manner.

Access

Authorized personnel at the care unit who have entered the information in the quality register have access to precisely this information. No other care provider accesses the information. Authorized personnel working on quality register have access to all information in the register.

Storage time and deselection

Information about you is deleted when it is no longer needed to develop and ensure the quality of the care.

Your rights

• You have the right to avoid information about you being registered in the quality register.
• You have the right to have information about yourself deleted from the register at any time.
• You have the right to know if information about you is in the quality register and in that case get a copy of it free of charge. You have the right to receive the personal data in electronic form.
• You have the right to have incorrect information about you corrected. You have the right to have incomplete information supplemented.
• Under certain conditions, you have the right to request that processing of information about you be restricted. This applies during the time that other objections are assessed. Restriction means that the quality register may not do anything with the information about you other than continue to store it.
• You have the right to receive information about which care units have access to information about you and when.
• You are entitled to damages if the information about you is handled in violation of the General Data Protection Regulation or the Patient Data Act.
• You have the right to lodge a complaint with the Privacy Protection Authority, which is the supervisory authority in this area.